What’s New at Heal Canada

Spotlight – The Latest in Patient Advocacy

We’re excited to unveil the newest edition of our digital magazine: E3 Advocacy – Empower • Engage • Educate. This issue brings together powerful voices from across the patient-advocacy space with in-depth features, real-life stories and actionable insights for advocates, caregivers and healthcare professionals alike.
We invite you to download the latest E3 Advocacy issueshare your reflections, and subscribe to our podcast series to stay connected to the evolving world of patient advocacy in Canada. Together, we’re transforming voices into action.
Thank you for being part of the Heal Canada community.

You and the team have done such an incredible job with a diverse set of topics and providing so much helpful and practical information.

Dr. Danielle Rice is a Clinical and Health Psychologist and Clinical Lead at the Mood Disorders Treatment and Research Clinic at St. Joseph’s Healthcare Hamilton, and an Assistant Professor at McMaster University in the Department of Psychiatry and Behavioural Neurosciences.

Coming Soon – Our Podcast Series

Our podcast platform, Empowering Voice: Advocacy in Action, continues to grow. Here’s a preview of upcoming episodes you won’t want to miss:

Episode

Breaking Barriers:
Navigating Insurance & Access to Care
featuring a patient advocate and a policy expert

Episode

Digital Tools for Patients:
What’s New & What’s Next
exploring mobile health apps, wearables, and how they empower patients

Episode

From Patient to Partner:
Collaborating with Clinicians & Researchers
a round-table discussion
with multi-stakeholder voices

Stay tuned in the weeks ahead—we’ll announce release dates across Apple Podcasts, Spotify, YouTube and more.

Patient Advocacy Toolkit Training

In The News

James’ story: Navigating life with myelofibrosis

Myelofibrosis is a rare blood cancer that can have a significant impact on patients’ quality of life

James, 73, is a partner in a chartered professional accounting firm. In December 2024, James endured a mini-stroke that started this all. “They took my blood and found out my blood platelets were really high,” says James. “The doctor explained that this likely meant I had a form of blood cancer.”  

“Next thing I know, I’m at the stroke clinic one week and the cancer clinic the next week, juggling all these doctors’ appointments,” says James.   

The diagnosis came as a shock, but James’ reaction to his diagnosis was pragmatic. “Everybody’s got something,” he says. “I’m not going to go home and start crying. You just get at it and deal with it.” 

Separated from his wife and without a caregiver, James turned elsewhere for support. He contacted Heal Canada, an organization focused on patient advocacy through empowerment, engagement and education. “My friend started the non-profit after her husband died from MF,” says James. “She helped me ask the right questions and navigate this journey. She was a big help.” 

Patient organizations play a vital role in empowering Canadians as they navigate the challenges of a blood cancer diagnosis. Alongside Heal Canada, the Canadian MPN Network stands out as a key resource, offering invaluable education, fostering connections to essential support services and acting as a bridge to the medical community for Canadians living with MF.